The ABN Cognitive Neurology Services Audit 2024
The ABN Cognitive Neurology Services (CNS) National Audit 2024
We are completing an audit of specialist neurology led cognitive clinics to investigate procedures for referral, approach to diagnosis and follow up of all patients attending these clinics throughout the UK. This will take place at each centre, at one time, covering dates between the 1st of January 2023 and the 31st of December 2023. This audit has been endorsed by the Association of British Neurologists Cognitive Specialist Interest Group.
We will also look to the future, to consider readiness for new therapeutics, therapeutic trials, and novel technologies.
Previous national audits of memory services in England and Wales have been carried out by neurology and psychiatry-led memory clinics. However, the most recent national audit (2021) focused on predominantly psychiatry-led services, and there is a separate national audit of psychiatry-led clinics.
Some audit questions will be linked to national standards (NICE guideline [NG97] Published: 20 June 2018), and reflect previous national audits.
The information provided from this audit will give an overview of post-pandemic services and help plan future services at specialist neurology memory clinics. We aim to examine:
- Collaboration between multidisciplinary teams
- Differences between specialist cognitive clinics
- Overview of research integration in specialist cognitive clinics
- Readiness for anticipated changes in cognitive clinic working and potential novel technologies
We appreciate that it may require significant effort to answer some of the audit questions, and we thank you in advance for your time to complete it. We hope that you will agree that it is timely to review the state of neurology-led cognitive services.
Dr Timothy Rittman
Dr Katherine Stockton
Dr Jeremy Isaacs
Dr Catherine Mummery
Ms Karen Caldwell
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Question 1 - Institution
Which hospital is your service based at?
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Question 2 - Institution
Do you wish to be notified of the results of the survey when it is closed?
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Question 3 - Institution
Please confirm your email address here:
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Question 4 - Institution
What is the length of time (in minutes) allocated for a consultation?
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Question 5 - Institution
Does the patient complete questionnaires and information before coming to consultation?
If yes, which questionnaires?
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Question 6 - Institution
Do you collect data routinely on:
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Question 7 - Institution
Do you offer a post diagnostic follow up monitoring service?
If selecting Other, please specify::
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Question 8 - Institution
Is there a named contact for emotional support:
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Question 9 - Institution
Does your team have a clear point of contact for routine patient queries?
If Other, please specify
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Question 10 - Institution
Does your team have a clear point of contact for patients in crisis?
If Other, please specify
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Question 11 - The Clinic team
Please give details about your cognitive clinic team in terms of whole-time equivalent posts for Doctors
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Question 12 - The Clinic team
Please give details about your clinic team in terms of whole-time equivalent posts for Nurses
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Question 13 - The Clinic team
Please give details about your clinic team in terms of whole-time equivalent posts for other multidisciplinary members
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Question 14 - Team collaboration
Is there an opportunity for joint working with
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Question 15 - Diagnostic Tools
Which blood tests are available at your centre?
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Question 16 - Diagnostic Tools
Can you offer CSF Examination / Lumbar puncture for Alzheimer biomarkers
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Question 17 - Diagnostic Tools
What imaging do you routinely complete, and when
If PET is available in your centre, which ligands are available:
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Question 18 - Diagnostic Tools
Do you offer neuropsychology testing?
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Question 19 - Diagnostic Tools
What terms do you use for non-organic memory syndromes?
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Question 20 - Audit and service evaluation
Is your clinic part of an audit and/or service evaluation plan?
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Question 21 - Audit and service evaluation
How many audit and service evaluation projects have been completed or are in progress in the period 1st January 2023 to 31st December 2023?
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Question 22 - Audit and service evaluation
Does your memory clinic have external inspection of service quality by an external auditor / inspector such as MSNAP?
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Question 23 - Research
What types of research does your clinic currently contribute to?
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Question 24 - Research
Do you perform any drug trials?
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Question 25 - Research
How many active studies are running presently (please estimate if uncertain)?
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Question 26 - Research
Is your clinic/department associated with a university department?
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Question 27 - Research
Is your memory/cognitive clinic associated with/supported by any of the following:
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Question 28 - Research
Do you have research that is undertaken by MDT members e.g., research nurse, speech and language therapists, physiotherapists, neuropsychologists etc?
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Question 29 - Research
Does your centre have access to a research facility, or equivalent for your patients where they can undergo:
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Question 30 - Research
Do you discuss Brain Bank donation with your patients?
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Question 31 - Research
Please specify your local brain bank
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Question 32 - Future Considerations
Do you use Alzheimer blood biomarkers for clinical decision making:
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Question 33 - Future Considerations
Do you have access to a 3T MRI scanner for routine scans?
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Question 34 - Future Considerations
Do you employ automated analysis to support clinical decisions, e.g., to calculate brain volumes?
If Yes to the above, please give details
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Question 35 - Future Considerations
Do you employ machine learning or artificial intelligence, e.g. to calculate hippocampal or other regional brain volumes?
If Yes to the above, please give details
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Question 36 - Future Considerations
As far as you are aware, does your hospital employ artificial intelligence or machine learning in other areas, e.g. cancer care, renal medicine?
If Yes to the above, please give details
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Question 37 - Future Considerations
Do you have access to an infusion suite if an infusion therapy were to be approved for dementia?
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Question 38 - Future Considerations
If you do have access to an infusion suite, roughly how many additional patients could your service accomodate?
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Question 39 - Future Considerations
If you do have access to an infusion suite, with additional funding and current space constraints, in your opinion could your infusion suite cope with an additional:
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Question 40 - Casenote audit details on patients
How many clinics of the following type were run in the last year (please estimate if exact number unavailable)?
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Question 41 - Casenote audit details on patients
How many patients attended these clinics in the last 12 months?
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Question 42 - Casenote audit details on patients
Please provide the number of patients who did not attend their initial appointment in the last 12 months.
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Question 43 - Casenote audit details on patients
How many of each consultation type do you see per week/month/year?
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Question 44 - Casenote audit details on patients
If you are able to then please complete the following section.
We have also provided this excel sheet which you can download and contains the relevant codes that can be sent on to the coding department at your trust to ask them to complete this information and then return to us at: webmaster@dementiadata.com
What was the diagnosis breakdown of the patients seen in your clinics?
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Question 45 - Casenote audit details on patients
What were the sources of referral (total number over the 12 month period. Please estimate if exact number unavailable.)
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Question 46 - Casenote audit details on patients
What was the breakdown in terms of patient age? (total number over the 12 month period)
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Question 47 - Casenote audit details on patients
What was the breakdown in terms of ethnicity?
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Question 48 - Casenote audit details on patients
For the time from referral to diagnosis please record the average (in days):
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Question 49 - Casenote audit details on patients
How many scans were performed for each type in the 12 month period?
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Question 50 - Casenote audit details on patients
For which ICB(s) are you the predominant referral service? (please select all, in any order)
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